CF Patients Seize The Day

 

[Editor/Author Note: This article was originally published by My Town Magazine in 2014.]

Cystic Fibrosis patients inspired locals with their stories of bravery and triumph at the annual Cystic Fibrosis High Tea Fundraiser this past weekend.

The champagne flowed just as much as the tears as 85 friends, family members and strangers banded together to indulge in the delicacies offered by Lavender and Lace High Tea. The mood was lightened with a fashion parade, where Narangba Valley State School teachers modelled clothing provided by Just Add Bling. There were raffles to which local businesses donated prizes.

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Image via Cystic Fibrosis Qld‘s social media.

Cystic Fibrosis is a cause which is close to Lianna Manuel, committee members Heidi Willows, Kylie Bocking and Kristy Blacker’s hearts, as both Kristy and Kylie have children with Cystic Fibrosis. Having raised over $3000 (and counting) for Cystic Fibrosis Queensland, these ladies should congratulate themselves on their efforts.

One in every 2500 Australian children are born with Cystic Fibrosis every year, with one in twenty-five people carrying the gene.  The average Cystic Fibrosis patient will be admitted to hospital between one to six times a year, as complications increase with age.

With statistics like this, you would half expect patients to be downhearted about their experiences, but the afternoon of August 23rd 2014 was a time to look to the future rather than dwell on the negatives of this devastating illness. The Australian Rules venue, in the Moreton Bay Sports Complex at Burpengary, was filled to the brim with stories of positivity, such as that of Kristy Blacker’s son, who, despite doctor’s prognosis that he would not live to see his third birthday, recently graduated from palliative care and is preparing for kindy. He will turn four this year.

Another Cystic Fibrosis patient who refuses to be held back by her illness is Lucy. ‘I stand here today to give parents of children with CF hope,’ she says. She will celebrate her thirtieth birthday this November. Such milestones, while commonplace for the average person, are even more important for Cystic Fibrosis patients, who have a shortened life span. Her condition has taught her not to take life for granted. It has left her with the determination to make the most of the time she has. ‘Even if I don’t get to grow old, I have everything I want. I’m happy and I’m young.’

To find out more about the amazing work Cystic Fibrosis Queensland do, click here.

 

 

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